UPDATE 2/2/19

I’m trying to do this from a dialysis machine. There’s not a good place to sit my tablet and I have one hand tied up. But we will see how this works.

I finished my first round of chemo yesterday (4 treatments). I sailed through the first three treatments with very little as far as side effects. Yesterday was different. While I got up and drove into town and did errands with some energy, after my chemo, things went down hill fast. It was like the stomach flu from hell, which lasted through much of the night.

Yesterday, I was very happy that I had 9 hours sleep, plus a 2 hour nap. I figured that until day before yesterday, I had been averaging 2-3 hours sleep per night for almost 4 weeks. That new sleep was a godsend. Then last night, due to feeling like crap and having to go to the bathroom, every few minutes it was back to 2-3 hours.  I’m feeling better today (unless dialysis wipes me out) so I think I can sleep tonight.

Please keep praying for my kidneys. Again, they are functioning 80%, but not enough, yet, to get off dialysis. Having to stay on dialysis  will profoundly change my life and greatly reduce my chances of beating this cancer.

Between dialysis and my kidneys, my toxins (creatinine and BUN) are almost to the normal level, after being 10 X normal for who knows how long. My neurological symptoms have improved (these were caused by the toxins in my blood) but I pray they go away now that the toxins are down. These symptoms are muscle weakness, twitching, jerking and a few more.  Day by day, they are getting better.

Denise has returned to her busy job. Yet, my treatments are taking much from her. She is doing a run while I’m in Oak Harbor doing dialysis.  The two of us use to run 6 miles on Saturday. Now, my goal is to walk 100 yards.

Many people have asked me how they can help. Here is one thing. I promised Denise that I would build her a garden this spring (mostly fencing). I don’t see any way I will have the strength to do that alone. I would love to have some help in a “Garden fence raising” toward the end of Feb. If I had 2-3 people to help, we could do it in a few hours.  Mike

9 responses to “UPDATE 2/2/19”

  1. Ed Hopkins Avatar
    Ed Hopkins

    Keep the faith brother. And keep writing! God bless.

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    1. J. Michael Jones Avatar

      Ditto.

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  2. Luann E Flygare Avatar
    Luann E Flygare

    I continue to pray for both you and Denise. Love reading your writings and pray that you will be able to keep writing for many more years!!!

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    1. J. Michael Jones Avatar

      Thanks Luann. I hope you are doing well.

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  3. Kathy Millin Avatar
    Kathy Millin

    As a healthcare provider, it must be tough being on the ‘other side’!! Love reading your updates. Wish I was closer to help with the driving, the meals and the fence building. One of the most humbling things we found out when Jeff was recovering from surgery was having to depend on other people for things we had previously done ourselves! Keep heading in the right direction…..:)

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    1. Jerry Avatar
      Jerry

      I saw Denise’s pick up at hospital yesterday. Good that she is doing something else. Count me in on fence raising.

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      1. J. Michael Jones Avatar

        Thanks Jerry, I will.

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    2. J. Michael Jones Avatar

      I think if YOU were close enough to bring meals, I would soon weight 800 LBS. (from what I’ve seen about your cooking)

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  4. Ann Meyers Avatar
    Ann Meyers

    Mike,

    Include Reid in the fence raising if you need more people and if I can help Denise cool and freeze food, clean house or anything else let me know.

    Ann

    Sent from my iPhone

    >

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