Pivotal Day – The Crampon is Laced!

Image result for boots with crampons

For my medical friends, I will start with a riddle and then explain to the others why this day has been so pivotal, and good. Bernie Sanders would even say this is Hoouge!

Table of my basic labs this week:

Tests 1/11/2019 1/12/2019 1/13/2019 1/14/2019 1/15/2019 1/15/2019 16-Jan 1/17/1900 1/18/2018 1/19/2019 1/20/2019
Creat 11.5 10.36 10.28 9.93 9.52 10.03 9.65 7.16 6.6 4.86
Bun 125 123 115 124 128 141 144 98 61
Ca 8.3 8 7.5 6.9 7.7
Hgb 9.6 9.5 8.6 8 7.8 7.7 7.5
HCt 27.7 26.4 23.3 22.4 21.1 20.4
K 6.9 5.9 4.5 4 3.7 4 3.5 3.9
Anion Gp 13 13 17 17 15 15 14

I will point out that I had dialysis on 1/17 and 1/19. Do you see it? It is coming! My creatinine dropped on 1/18, a  non-dialysis day! I have kidney function!!!!!  I don’t know how much, but my kidneys are not completely dead. My nephrologist had a big smile on her face.

This is a big help in the battle going forward. Yes, I still have an incurable cancer, but it takes you out by killing your kidneys and bones (as well as more complicated ways).

Now, to the practical. I was feeling better this morning in direct relationship to the numbers coming down. I washed my hair, by myself. Today, was my 4 – hour plasamaphersis, which removes the bad cancer plasma from my blood (so I do get more kidney damage). After this treatment, when all my blood is practically taken out and put back in, leaves me quite wiped out.

I joined a Multiple Mylenoma support group today, online, and finally heard “horror” stories from people who started out like me (or worse in a couple of cases) and survived, some for several years. All I had been hearing is, “People rarely recover from where you are.”

I am happy to say that after living near death for several days, I am now serious with a long-road ahead, but I feel I’m out of the woods for a respite. I can refocus from saying goodbye to my dear family, into planning for treatment, with a hope for a remission.  Thanks for so many of you who have prayed for us.

I am sorry for typos. I am very high on steroids, I have to type with IVs in my hands and tubes in my chest and the time I can type is so limited that I don’t have time to proof-read. I have also read many “well-wishes” from people and I would love to respond when I can, but I do read them.

 

11 thoughts on “Pivotal Day – The Crampon is Laced!

  1. You are a survivor! You have overcome more desperate situations than anyone I have ever know. You are a fantastic father, brother and husband! Our Mother loved you the best and most of all of her children but we knew it and admired her for always being so proud of your accomplishments. You were the baby of the family and as such got special attention from all of us. And I have had so many conversations with Mom this week in heaven. I told her to cook a buffet for anyone who could help you through this as we know cooking was her first love. We are all fighting for you with you and beside you. We love you more than life itself. So keep praying and fighting with us. Mom usually gets what she wants and having you here with your family for a long long time is her is what she wants! Love you Bro!

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  2. Such good news! I know you’re not out the woods, but it seems that mountain is shrinking a bit. I’m grateful to be watching your story unfold and remain in prayer for a celebration-worthy recovery. For remission. For hope. For God’s kindness toward you each step of the way! Rest well, friend…

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  3. Oh Michael, such good news on your blood tests and so good to hear a little glimmer of hope in your writing!! We all continue to pray that the cancer is arrested in those kidneys and that they resume their full function!! Keep looking up. Blessings. Kathy Dalseg

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  4. Not only prayers for healing tonight but also prayers of thanks for the blessings you have been given. Thank you for the update. Now get a good night’s sleep.

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  5. Not only prayers for healing tonight but also prayers of thanks for the blessings you have been given. Thank you for the update. Now get a good night’s sleep.

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  6. Oh Michael, such good news on your blood tests and so good to hear a little glimmer of hope in your writing!! We all continue to pray that the cancer is arrested in those kidneys and that they resume their full function!! Keep looking up. Blessings. Kathy Dalseg

    Like

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