I just had my labs done. The fantastic news is, now that I’m off the 5 drugs used to control my graft vs host syndrome, my kidney function is much better. The thoughts of returning to dialysis is a mute point at this juncture. Thanks for your interest and prayers.
My biggest problem (from a lab standpoint) is that my anemia is much worse, dropping one hemoglobin point per week. It is not clear why, as several factors can do this. But it makes me extremely tired and if I just walk 100 yards my heart rate gets to 140 and I’m short of breath. I had five transfusions in Seattle and may be due for more now. But transfusions are not the easy answer and can create their own problems.
J. Michael Jones 
3 responses to “UPDATE: 8/12/19”
YEAH!! YEAH!! SO HAPPY!!
Congrats Mike. Dialysis is the new four letter word!
Ann Ann Hutchinson Meyers, Ph.D. Annmeyers@gmail.com 210-213-0320
“The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.”
Ralph Waldo Emerson
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That is great news about your kidney health Mike! 🙂 Is another transfusion what they are suggesting for your anemia? Any other options that may have less side effects? Continued prayers for answers on your severe anemia so you can start to return to more normal activities.
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Great news, Mike…happy for you. While my main external symptom—fatigue—has increased lately (often requiring a lie-down after mundane tasks like unpacking groceries, and enough to discourage me, for safety, from making my annual summer solo-drive to the UP…BTW, yes, I’m still in Boston), it’s not to be compared with yours.
Can you see my email address here? Hasn’t changed…let me know where I can reach you (not comfortable sharing personal stuff on the open ‘net)
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