I just had my labs done. The fantastic news is, now that I’m off the 5 drugs used to control my graft vs host syndrome, my kidney function is much better. The thoughts of returning to dialysis is a mute point at this juncture. Thanks for your interest and prayers.
My biggest problem (from a lab standpoint) is that my anemia is much worse, dropping one hemoglobin point per week. It is not clear why, as several factors can do this. But it makes me extremely tired and if I just walk 100 yards my heart rate gets to 140 and I’m short of breath. I had five transfusions in Seattle and may be due for more now. But transfusions are not the easy answer and can create their own problems.