I wish I had good news. However, my anemia is continuing to worsen rapidly (my hematocrit is now 23, so I have about 1/2 have the blood that I had one year ago) and we don’t know why. I can’t imagine how someone could feel worse and still be alive. My plans for physical rehab and exercising is out the window as it takes all my strength to go from one room to another. I’m in great need for a transfusion as soon as I can get a hold of my hematologist. But that will only give temporary relief of my symptoms. We never saw this coming, especially with no clear answers. I remain quite discouraged and just shy of feeling hopeless in this marathonic journey.
UPDATE: 8/19/19
9 responses to “UPDATE: 8/19/19”
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So sorry to hear this. Sending you all the best for an answer and solution to the anemia.
KLikeLike
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Our congregation and prayer chain is lifting you up, Mike. Prayers for recovery of your blood supply!
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Oh Mike..I wish I had the words and answers to help your situation turn around. You’ve come so far, please hold onto that sliver of hope and we will pray hard that you get your transfusion ASAP and pray even harder it buys you enough time in figuring out just what the hell is causing this severe anemia.
As a past migraine patient of yours (I never got around to commenting when you brought up you were perhaps not empathetic enough) well that is simply not true. Not in my experiences. I did not follow you living here in Marysville to your MV practice then to Anacortes back to MV and then to Island Hospital because you were not listening and yes..feeling of my plight. I know you went above and beyond not only with offering me everything under the sun but also with dealing with our outrageous and disgusting insurance companies. I will be forever grateful for all the time you spent studying and going to seminars in an effort to understand so many peoples issues with migraines and other neurologic issues. I know I am not alone in feeling this way and you should know and carry with you all of your accomplishments.
I know you still have a lot more to offer people in general with your knowledge and view on topics you share. Please keep on fighting against discouragement. While the rest of us do our best to hold you and your family up in hope and prayers.
With respect and admiration,
Barbara HammondLikeLike
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God bless you Mike. My heart is broken knowing how you, and your family, are suffering. Life can be so damn difficult. Prayers for all of you.
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Oh Mike, I am so deeply sad to read things have continued to turn.
I hope you can breath deeply and fight as well as you can fight when you can barely sit up you are so tired.
If there is ANYTHING we can do for you, or for Denise, please PLEASE let me know.
I continue to pray.
Ann Ann Hutchinson Meyers, Ph.D. Annmeyers@gmail.com 210-213-0320
“The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.”
Ralph Waldo Emerson
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So sorry Mike. Once again I am lost for magic words. You and Denise are always in my prayers. Hugs.
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J. Michael Jones
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J. Michael Jones 
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