My long, long list of 1 year post transplant tests are complete. I (Denise can’t come this time) will be going to Seattle Cancer Care Alliance on September 28-29 for a comprehensive exam and review of the tests to establish the course going forward. I hope I can become one of their long term patient after that. Studies have shown that Multiple Myeloma patients live more than twice as long if they are followed by a specialist. So far, I have not been able to establish there, partially due to their restrictions due to COVID.
I have been doing very well with my current chemo, however, with my new insurances, our co-pay was $2600 this month. This creates tension of how do we will go forward? But after four months of working on this we exhausted all avenues without help. If I had no insurance the drug would have been free. I hope the plan in Seattle can help steer me in a new direction.
Today, after 100 straight days of painting on our house, we finished! Denise was able to help this past two weeks, which was a godsend. I am grateful that neither of us were injured after working very high and in complex situations (ladders on boards, boards on steep roofs, ropes, and etc.).
Being laid off from work was about as difficult as the cancer itself. Tonight I applied for a cancer research position. The high cost of my chemo and the missing of working in medicine was my motivation. Cancer research would also be rewarding and would also be self-serving. There are no headache positions available that would allow me to work from home.
Thanks for your interest, prayers, and love.