Update: Feb 4, 2021

Summary:

My follow up labs are stable. I’m still waiting on my appointment with my cancer doctor for our next strategy.

Longer Version:

I know that some people are interested in what’s happening with my cancer. I shared on Jan 4th that some of my lab values were surging. I made an appointment with my cancer doctor and the next available was the last week in February, so that hasn’t happened yet.

Without getting to far into the boring nitty-gritty, there are a dozen or so labs that give us feedback on the state of my cancer, a handful of most importance. One of those measures the amount of lambda light chain proteins. That protein is used to create antibodies. My cancer is of the bone marrow that makes that protein. In a normal person, it should not be above 26 mgs per liter. When I was diagnosed, two years ago, mine was 3,000. Those proteins were so thick that they gummed up and killed 90% of my kidneys. Most of my suffering as been from renal failure (and the chemo).

While most of the labs that measure my cancer have been elevated but stable, my lambda light chains went from 40 to 60 and then surged in January to 131. That frightens me because I am barely off dialysis and no one knows how far above normal the proteins have to be before they cause trouble. To suddenly surge tells us that either the cancer is becoming more active, or the chemo is not working so well.

Whew! With all of that said, I had my latest labs this week. I always have to brace myself that the proteins could still be surging. If so, it would mean an emergent visit to the cancer center before what’s left of my kidneys is destroyed. These labs came back with the lambda light chains at 126, so roughly the same. Certainly not higher. While this rise is concerning, it is not a medical emergency.

The good news is that my renal function test shows that my beat up kidneys are continuing to improve. My GFR has risen to 25.4. Normal is above 60. But mine started at 4. Dialysis starts at roughly 15-16.

Thanks for your interest and prayers.

Mike

Published by J. Michael Jones

J. Michael Jones is a writer and PA who lives in Anacortes, Washington. He is the father of five children, who are now grown and out discovering this wonderful world on their own. He has previously focused his writing on non-fiction including medical topics and issues of the philosophy of Christian thought. With the success of his last book, Butterflies in the Belfry, Michael is now moving into fiction with his first novel, The Waters of Bimini.

3 thoughts on “Update: Feb 4, 2021

  1. Thank you for your update. I’m sorry you have to wait to get in to see your doctor. I have some insight as to how it feels to get unwelcome news and then wait. Remember, you (and Denise) are always free to join our Cancer Companions support group. We meet via Zoom on the second and fourth Tuesdays of the month at 6:30 pm. If you do join us, please send us the email address you want to use so we can send you the link.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: