Again, sorry to be posting so often and so much about my health. As I mentioned before, this is where my family gets their updates so bear with it.
So, the new cancer battle is underway, well, almost. Today I had my bone marrow biopsy. My last one was the worst pain of my life, but brief. This was my sixth and not too bad. Maybe a 6/10, not like last time.
We know the cancer is out of control because of the lambda light chains it produces. The biopsy will tell us how much of the marrow is involved (previously it was jut 8%) and they will do genetic testing to see if the cancer has evolved into a more aggressive type.
On Wednesday I will have a PET scan to see if the cancer is showing up outside the bone marrow. I had one spot in my left shoulder blade and one in my hip on the last scan, which is typical for multiple myeloma.
Two weeks ago today the myeloma specialist in Seattle said I needed to change therapies immediately. I’ve been very anxious to get that going before I suffer further kidney damage, but it seemed like I was falling into the health care quagmire. Today, at least I got the orders done for the new treatment, daratumumab (a weekly infusion), lenalidomide, and dexamethasone. Now I will have to wait on insurance approval which could take from a few days to a few weeks. I will be on this aggressive treatment program for two months and if the lambda light chains drop, I can go on one agent alone, daratumumab as my maintenance drug. I would stay on that until someday, weeks or years, it stops working then do the more radical treatment such as Car-T.
So, that’s where I’m at. I had been feeling pretty good (80% of normal) but there is a great potential for side effects of these new meds, but I will hope and pray for the best.
Tonight was a lovely night, cooking delightful neapolitan-style pizzas in our outdoor pizza oven, then sitting by the campfire eating it with Ramsey and his girlfriend Kate. The lake was lovely under an azure evening sky, eagles perched high in the Douglas firs looking for trout. We kayaked across it in a lovely ash-framed French (Nautiraid) kayak I just restored. A chilly, but bearable breeze was coming off Puget Sound and clearing away the smoke from the fire. Such a pleasant evening, I’m afraid that we were the source of the angels’ envy.
Thanks again for your interest, love and, prayers.