I know that this is a topic that could be seen as self-serving, because I’m one of those people in crisis. I also don’t want to create an air of paranoia about talking to me or anyone in this position, with the fear that you might take it wrong. I do want to broaden this…

I’ve talked before about the roller coaster from hell that goes along with have many forms of cancer. If that metaphor is correct, then yesterday was one of those days that it took a sudden dive. Virtually all the good news items from my previous update, went sour . . .  in one day. After…

Introduction I have been thinking about this concept of the loss of truth per society as a whole, for some time. While it has always been an interest of mine, during this phenomenon of “fake news” and politically oriented “facts,” it has become paramount in my mind. As I’ve tried to organize these thoughts, I…

I think I am considering this topic for several reasons. The main one cam, as I laid in my bed beneath the warm covers this morning, I listened to NPR’s Morning Edition on my I Phone. They did a story about the life expectancy in America is dropping, while in the rest of the industrialized…

This is brief follow up since my last posting about my health status. I’ve started a new medication (propranolol) to try and control the muscle twitching  and so far there are some positive signs but improvement is not clear. My renal labs, which I shared in great detail previously. . .  well, it turns out…

I have a lot of vivid dreams these days. I think that is true for three reasons. First, my sleep is usually interrupted, either by having to get up to have diarrhea during the night, or the relentless twitching.  All of us dream but we usually forget them, unless we wake soon after. The second…

So, I have some of my results back. I will say again, I’m sorry for giving so much detail on these posts but this is also the space that my family is updated on my progress or lack of. Labs My hemoglobin (best measurement of anemia) is much better at 12.9 (normal is 14-16). That’s…

As I mentioned before, for the cancer victim, their lives are marked by a sequence of pivotal moments where information will be disclosed that tells them if they are on a path to a horrible death or have some hopes of recovery and many years of living. It is the roller coaster ride from hell.…

Just with this title, I can hear some people cheering (and a few showing their disappointment in me), however, I may be disappointing most to the true believers (in CAM) by the time I am done. If you know me, you know I am a very evidence-based-medicine person. I love facts and am skeptical about…

I continue making progress, at least in the way I feel. My specialist at the cancer center recommended that I try to stop a medication (Dapsone), which she had started to prevent pneumonia. This medication can cause anemia because one of its common side effects is to destroy red blood cells. I was supposed to…