UPDATE: 6/15/19

I am day + 3 of the stem cell transplant. Things have gone relatively well, although I am now descending, as expected, into the most difficult time, where my old bone marrow is burning out and the new hasn’t started. This time of the deepest misery should last 10 days.

My kidneys did take a big hit during the transplant (as determined by the renal function blood tests). I was fearful that I would have to go back on dialysis. However, since then, in the last two days, they are bouncing back. Today marks one month since I’ve had dialysis.

Our biggest hurdles including me having the typical (bad) nausea and diarrhea with a lost of appetite.  I am not sleeping well due to my neurological twitching being worse during this.

Denise is by my side most of the time, but sleeping on the Peter Gross House. I should say “Trying to sleep” as she is facing insomnia as well.

The worst days should be the middle of next week. That is where most patients get very sick and their hair comes out.

I’ve now walked 200 laps around the hospital halls, which converts to 20 miles. I am shooting for a marathon before I’m too sick to walk.

Published by J. Michael Jones

J. Michael Jones is married to Denise and is the father of five successful adult children, scattered around Washington state and Minnesota. He had a 38-year career as a physician associate, until he was forced into retirement by multiple myeloma in 2019. During his career, he waw a headache specialist at Mayo Clinic, and in the pacific northwest, and worked as a generalist in a variety of locations overseas, including Abu Dhabi, Oman, Cyprus, Egypt, Pakistan twice, Nepal, and Afghanistan's Khyber Pass. He has always loved to think and write, publishing seven books and countless journal articles. After retirement he has focused on his fiction writing including his coming book, The Stones of Yemen.

3 thoughts on “UPDATE: 6/15/19

  1. Hang in there MIKE. Sending you a pretty picture to meditate on what you’re going through the tough stuff. Those 20 miles are making you even tougher. We’re thinking about you. Give Denise a hug for me.

    Ann Sent from my iPhone



  2. God, strengthen Mike’s body as he goes thru the dark shadows of the valley of his cancer cells being killed off and snuffed out!!! Replace them with regenerative strong healthy ones. Give him a reprieve from the twitching, diarrhea, nausea and give restful sleep for him and Denise. Wow, let him know that bald is beautiful, so says my daughter🤣🤣🤣🤣🤣💤💤💤💤☀️☀️ to follow!!!


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: