After having my transfusions last night, I had high hopes it would help with the disabling symptoms. When I awoke this morning, I was feeling worse and therefore quite discouraged. As the day when on, I started to notice a big improvement in my stamina over the previous two weeks. This afternoon, I went with…

In the hospital for two units of blood last night. The lab values certainly showed I needed it. To my disappointment, so far, there has been no improvement in symptoms, which adds another layer of perplexity. I’ve suspended hope for now. Denise says she has enough hope for both of us, which is a good…

I will add this again as this link as most, I assume, are not interested in the topic.

I wish I had good news. However, my anemia is continuing to worsen rapidly (my hematocrit is now 23, so I have about 1/2 have the blood that I had one year ago) and we don’t know why. I can’t imagine how someone could feel worse and still be alive. My plans for physical rehab…

My nephew David passed away today. He was a man of great artistic talent, which he got from his mother, my sister. He was a really nice guy from all angles and a loving husband. We mourn. I ask for prayers of comfort for my sister Sandra, his brother Eric, and David’s wife Rizza.  Mike…

UPDATE: Always Something I had my stem-cell transplant in mid-June. Around July 4th (I know I’ve said this part before) I came down with graft Vs host syndrome with serious abdominal pain, head to toe rash, and profuse diarrhea. Was started on five new daily medications, the cornerstone being a high dose of steroids (after…

Ten days ago I said I would come back and finish this thought in part II (and there will be a part III). It has taken this long to formulate the thoughts into writing plus I haven’t been feeling well. But I’ve decided not to post it here because I assume most of my current…

I just had my labs done. The fantastic news is, now that I’m off the 5 drugs used to control my graft vs host syndrome, my kidney function is much better. The thoughts of returning to dialysis is a mute point at this juncture. Thanks for your interest and prayers. My biggest problem (from a…

I will be quick to say that someone blaming me for my cancer almost never happens. I’m glad, because such a conversation, would really piss me off. People have been extremely generous and compassionate. There have been only a few hints of such an attitude. It is usually from an acquaintance rather than a close…

I have debated in my mind if I would do any more “updates.” Part of me wanted to wait until I had nothing but good news to share. None of us like to hear about bad news and those who “over-share” their struggles are quickly marginalized within our optimism-longing brains. I’m not a whinner. I…